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Chronic Fatigue Syndrome

Chronic Fatigue Syndrome, Fibromyalgia, and IC Disease

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Interstitial Cystitis

Interstitial Cystitis Diet – More Foods Some May Need to Avoid

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Interstitial Cystitis patients have been told for years to avoid certain foods and drinks that can cause flare-ups of the bladder disease, making us urinate more, have more pain, and more pressure.  We all know that this list … [Read more...] about Interstitial Cystitis Diet – More Foods Some May Need to Avoid

Filed Under: Interstitial Cystitis Tagged With: Interstitial Cystitis

Long Interstitial Cystitis Remission Ends

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Chronic - I hate that word and I hate what it means. Every time I find out I have developed yet another chronic illness, it is just another slap in the face of how I'm going to have to live the rest of my life with yet even … [Read more...] about Long Interstitial Cystitis Remission Ends

Filed Under: Interstitial Cystitis, Sandy's Journey Tagged With: Interstitial Cystitis

New AUA Clinical Guidelines for Interstitial Cystitis Released

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    The American Urology Association has finally released this month the long-awaited new clinical guidelines for Interstitial Cystitis/bladder pain syndrome!  These new guidelines may be the most comprehensive clinical care … [Read more...] about New AUA Clinical Guidelines for Interstitial Cystitis Released

Filed Under: Interstitial Cystitis Tagged With: AUA Clinical IC Guidelines, Interstitial Cystitis

ME/CFS Makes Everyday Life Overwhelming

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ME/CFS Makes Everyday Life Overwhelming

Lack of sleep, and the hazy, uncontrollable, unrelenting exhaustion that zaps every bit of energy from my body - a CFS flare.  It has taken over my body, mind and soul and I feel it in everything I try to do and it is in … [Read more...] about ME/CFS Makes Everyday Life Overwhelming

Filed Under: ME/CFS, Sandy's Journey Tagged With: Interstitial Cystitis, ME/CFS

Breakdown At Doctor’s Office Yesterday – Maybe A Breakthrough?

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Breakdown At Doctor’s Office Yesterday – Maybe A Breakthrough?

I am normally not a very emotional person and I don't cry a lot. My son and I were just talking about crying the other week and I told him that it was okay to cry and he said, "But mom, you don't cry". I told him I have cried … [Read more...] about Breakdown At Doctor’s Office Yesterday – Maybe A Breakthrough?

Filed Under: Fibromyalgia, Interstitial Cystitis, ME/CFS, Sandy's Journey Tagged With: Fibromyalgia, Interstitial Cystitis, ME/CFS, Sandy's Journey

Love, Understanding & Compassion Are A Two Way Street

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Love, Understanding & Compassion Are A Two Way Street

As I sat down to write this post, I found that typing these words were not easy.  It was not easy because it's always a difficult thing to realize, then admit (especially to the world) one's own faults.  But here I am, once … [Read more...] about Love, Understanding & Compassion Are A Two Way Street

Filed Under: Coping Corner Tagged With: Fibromyalgia, Interstitial Cystitis, ME/CFS, Pain

Disability Proving to Be A Major Hindrance Around Every Corner

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Disability Proving to Be A Major Hindrance Around Every Corner

  Social Security Disability is not a process to be taken lightly. Many of us with CFS, Fibromyalgia, IC Disease or a combination of the three have found it necessary to go to these extreme measures for financial … [Read more...] about Disability Proving to Be A Major Hindrance Around Every Corner

Filed Under: Disability Tagged With: Disability, Fibromyalgia, Interstitial Cystitis, ME/CFS

Talking To Your Employer About Interstitial Cystitis

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The American Disabilities Act requires employers who have more than 15 employees to make accommodations for people who have illnesses like Interstitial Cystitis.  If you are finding that your IC Disease is affecting your job … [Read more...] about Talking To Your Employer About Interstitial Cystitis

Filed Under: Coping Corner, Interstitial Cystitis Tagged With: Interstitial Cystitis

Interstitial Cystitis Awareness Month: 31 Daily Facts About IC

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Interstitial Cystitis Awareness Month is almost over and I wanted to make sure I mentioned it again before October ended.  I found a great link from the Interstitial Cystitis Network with 31 Daily Facts About IC and I wanted … [Read more...] about Interstitial Cystitis Awareness Month: 31 Daily Facts About IC

Filed Under: Interstitial Cystitis Tagged With: IC Awareness Month, Interstitial Cystitis

Clinical Research Study Recruiting for Interstitial Cystitis/Painful Bladder Syndrome

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If you would like to take part in a clinical research study that is currently recruiting Interstitial Cystitis/Painful Bladder Syndrome patients, you can go to the Urinary Pain Study site locator, enter your city and state, … [Read more...] about Clinical Research Study Recruiting for Interstitial Cystitis/Painful Bladder Syndrome

Filed Under: Interstitial Cystitis Tagged With: Interstitial Cystitis

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