Children are very observant and they notice every single thing. They know when something is not right and they know when we are not well. They can sense it whether we try to fake it or not. My son always knows even when … [Read more...] about How Our Children Respond to CFS & Fibro Flares
I have just finished reading Parting the Fog: The Personal Side of Fibromyalgia/Chronic Fatigue Syndrome by Sue Jones and there was a part in the book that really struck a chord with me. It is the chapter where Sue talks … [Read more...] about Who Has Stood By You & Your Chronic Illness?
As mothers, it is hard seeing our children off to elementary school for the first time when our children are 5 years old. These days, even though most children are in daycare part-time or full-time, starting elementary school … [Read more...] about CFS Moms Look Forward to Back to School Season!
Trying to find the courage, strength, and energy to continue to fight with ME/CFS & Fibromyalgia is enough to make us feel like we are going to go crazy but we have to dig deep and not give up on ourselves even when … [Read more...] about We Can’t Give Up On Ourselves When Everyone Else Has
Here in PA, we have been having some really bad weather over the past week - two blizzards within 5 days. That is a lot of snow! The snow itself was bad enough but add to that the wind and the size of the snowdrifts have … [Read more...] about Putting Work, Life, & Health Into Perspective
Tuesday as I was driving home from work, the radio announcer mentioned that there are only 40 days left until Christmas and I immediately felt myself start to panic and stress. It has been a really rough few months and I … [Read more...] about Putting the Holidays Into Perspective With ME/CFS & Fibromyalgia
I've been sick with ME/CFS for almost 20 years and I am beginning to believe that you never fully learn how to deal with being chronically ill. I think I have come a long way from where I used to be but I'm still not where I … [Read more...] about Coping With ME/CFS: Two Steps Forward, Three Steps Back
Vacations and the occasional big family event can be exciting and a lot of fun but for ME/CFS & Fibromyalgia patients, it can also mean a lot of symptoms flaring and confinement to our beds. I always look forward to … [Read more...] about How Do You Prepare For Vacations Or Big Events?
We all have found out that our chronic illnesses not only affect us, but our spouses and children as well. When just one person in the household is sick, the entire family suffers. In our house, both my husband and I are … [Read more...] about Children’s Roles In the Home with Chronically Ill Parents
Thanks to How to Cope with Pain for including this post as part of their Pain Blog Carnival! To read all of the selected posts, please click HERE. Dr. Bruce Campbell, PhD, a ME/CFS patient, said a woman with ME/CFS … [Read more...] about Coping Tips for ME/CFS & Fibromyalgia – the 1% Solution & Other Ideas