From what I read earlier this year, I thought and was under the impression that the new name for Chronic Fatigue Syndrome was officially being changed to ME-CFS. But according to this article on ImmuneSupport, a voting survey will be available over the next several weeks for patients a chance to choose the new name.
The opinion poll will be placed on the websites of many United States based CFS & Fibromyalgia organizations.
We did not get to choose the name for this illness almost 20 years ago, but now we do have a say and we do have a chance to voice our opinion. Please take advantage of this right that we are being given and vote!
Thank you for the tip off!
This got me thinking yesterday what name I would be comfortable with. I’m inclined – because there’s still such mixed opinion about cause and diagnostic criteria – to support the lobby for naming it after someone.
There was a suggestion (in Britain) of naming after the British doctor and researcher who did so much to raise awareness in this country and advance understanding of the condition. Argh – I can’t remember his name! Brain fog strikes!
BTW – just to say I read your blog often but usually through RSS feed. I don’t often comment but wanted to say hello I’m reading. 🙂
PS: I tried searching for the name without success but am shocked at how long this debate to change the name has been going on for without agreement.
This collection of name change proposals is interesting – but dates back to 1998!
Hi! Thanks for reading here. I have been to your blog too! I think it is going to be difficult to find a name that truly fits because we don’t know what causes CFS for sure. If there was a better understanding, I think a name change would be easier. I do agree though that the name needs to be changed.