Researchers at Tufts University in Boston and and the University of Illinois in Chicago are looking for U.S. ME/CFS patients who would like to participate in a a study to identify genetic risk factors that may be associated with the illness. There is no cost to selected participants.
The study is designed to allow remote, home-based patient participation, allowing the broadest sample possible with a target of 400 individuals, ages 13 to 64, with a documented physicians diagnosis of either ME/CFS (chronic fatigue syndrome) or mononucleosis.
- The first portion of the study includes a phone interview and free home-based blood draw target participation 400 patients.
- The second part of the study will follow 40 selected ME/CFS patients and 40 healthy control subject over a two-year time period. Theseparticipants will be interviewed by phone and submit home-based blood draws on three occasions during that period.
- Throughout, participants will be able to continue their current routines and therapies.
Dr. Brigitte Huber of Tufts University and Dr. Renee Taylor of the University of Illinois at Chicago are both the study’s principal investigators. They both specialize in ME/CFS research.
To learn more, contact Dr. Renee Taylor
Phone 847-207-7944 (office)
Leslie K says
I would encourage anyone with ME/CFS to see if they qualify for this trial. From this article, it sounds non-invasive (blood draws) and may help you as well as future generations.
My son participated in a clinical trial for his GI/Immune disease and it was very successful. We are still awaiting FDA approval for the drug, but w/o trials, they will never come to market.