I read a good article today online that I found about a woman in Dublin, Ireland who suffers from ME/CFS. Here is an excerpt and you can read the rest at Hidden Enemy: ME:
Imagine being struck down with an illness so invisible it produces no obvious signs or scars, but yet is so devastating that it leaves you unable to perform even the simplest of tasks. Unbelievable.
So unbelievable, in fact, that some people, including certain medical practitioners, still deny the existence of myalgic encephalomyelitis (ME).
Someone who endures the strictures of ME on a daily basis is Sarah O’Callaghan, 32, from Dublin.
When you meet her, you are immediately struck by her bright smile and gorgeous curly hair. Sarah is slim and usually animated. However, there are days when she can do little more than stay in bed, hoping her energy levels will return and that her terrible muscle and joint pains will lift. On better days, though mobile, she paces herself carefully.
People all over the world are suffering from this debiliatating disease and governments in all of these different countries are putting CFS on the back burner, including the United States. It’s not fair that we don’t count to anyone. We all need to get our stories out there and to keep raising awareness and doing what we can.
Sandy,
Thank you for posting this, awareness and more awareness, is all I can say
Hi I do understand ME /CFS my son was struck down at 19 and we found nothing to help him. but when he was 30, 2 years ago we read an article in the Daily mail about a young girl from Nottingham, who had overcome it.
We then tracked down DR Ray Perrin in Manchester and went to see him. Daniel now lives a normal married life with 2 small children.
I live in Dublin these days but I was so inspired by Ray Perrin that I trained in the Perrin Technique myself and help as many people as i can.
For anyone who is interested in ME / CFS Ray Perrin,Prof Basant Puri & Dr Nina Bailey will be addressing the Midlands Fibromyaliga / ME conference in the bridge house hotel Tullamore County Offaly on the 31/10/2010.