I still am not feeling well today. The exhaustion is overwhelming. I had to go to the store for some things and as soon as I returned home, I fell asleep. So from 11:30 a.m. – 4:30 p.m. I slept. I hate missing out on my days and sleeping them away. My body doesn’t really give me any other choice though.
My son was feeling better, so he was at grandma’s house today. I haven’t been able to exercise because the exhaustion has been too bad. I keep having these hot flashes, then cold chills, and I haven’t decided yet if it is from some bug or virus, or just my hormones going crazy again. Sometimes it’s hard to tell the difference.
It’s amazing how some people react to Chronic Fatigue Syndrome. They think that we should just be able to “suck it up” and “push through being tired”. I hate the word tired. It doesn’t even begin to describe what I feel most of the time. Our disease is just like other chronic illnesses. We have to do what we have to do in order to survive.
My all time favorite thing that people say is, “You get exhausted because you THINK you will. If you just believe that you won’t get exhausted, then it won’t happen. You set yourself up for failure”. THIS IS SUCH BULL!! Would you tell a diabetic that they should not take their insulin and watch their diet because if they believe they can be well, they can? Or would you tell someone who has heart disease not to take their cholesterol medication, high blood pressure medication and watch their diet because if they just believe they can be well they don’t need any of these things? With Chronic Fatigue and Fibromyalgia patients, we need the rest. We have to watch our schedules. This is our insulin and high blood pressure medication.
I find that the older I am getting the more bad days I am having – and I am only 38. God, it scares me to think about what I am going to feel like at 50. I’ll probably feel like I am 70.