According to ImmuneSupport.com, there have been many people writing in letters sharing their concerns, thoughts and ideas for the upcoming name change for the Fighting For A Fair Name campaign.
Some of the concerns were that people said that ME should only stand for Myalgic Encephalomyelitis, while other patients said that ME should only mean Myalgic Encephalopathy.
Some patients in England & Australia are concerned that the U.S. definition for Chronic Fatigue Syndrome is not as strict as the definition of Myalgic Encephalomyelitis (ME) in their country. They feel that because of this, the name should not be changed to include anything with ME in it.
Rick Carson doesn’t feel that way. Here were his thoughts:
Their conclusion may be sound, though I doubt that many U.S. patients would share their view. It is here, after all, that Chronic Fatigue Syndrome damages patients every minute of every day.
There are still some patients that think the name Chronic Fatigue Syndrome is just fine as it is and that the name should not be changed. They can’t figure out what all the fuss is about. Others felt that ME was the perfect acronym because it stands for Myalgic Encephalopathy and Myalgic Encephalomyelitis.
Rick Carson says the important thing is that people are sharing their thoughts and their voices are being heard. If you want your voice heard on the name change subject, you can email your thoughts, concerns and ideas to the email address below: