This post is inspired by a new friend that I have recently made in California. I met a woman on Facebook who has CFS and who also believes she has Interstitial Cystitis. She has been sick for a long time and she found me through my website and through my Facebook page. We started sending messages to each other and then began talking on the phone and I have now made a new friend across the country!
It is always amazing to me how there is such a bond between those of us with chronic illness. We speak the same language, we understand each other like no one else can, and we can joke with each other about what we can and can’t do and only we get it, you know? It’s like my new friend and I instantly clicked because we speak the same language, we walk the same walk every day, we live the same life. We don’t have to pretend to feel well when we don’t; if we are too sick to call each other and we go a while without talking, we understand and we don’t get offended or upset. WE GET IT.
She discovered that through talking to me she should ask her doctor to try Elmiron, he put her on the medication and her IC symptoms have been doing better. As patients, we can help each other with our experiences. Each of us may have different severity levels and different things may work for each of us, but this is how we often find our treatments – through talking to others we have bonded with.
My new friend said it best….we were talking on the phone and she was supposed to be at a cookout. When she was late getting to the cookout and gave the explanation why she told her neighbor that she was “talking to one of her own kind.” Now that is how I would have explained it!