A recent study may have found that there are measurable differences between the spinal fluid levels of ME/CFS patients, Lyme Disease patients, and the healthy control subjects used in the study. Pooled cerebrospinal fluid … [Read more...] about Spinal Fluid Abnormalities Found In ME/CFS & Lyme Disease
Today was my third trip in the last month to the doctor's office for the sinus infection that is stubbornly holding on. As the doctor was examining my ears, my sinuses, and my throat, she was in shock over how I still had the … [Read more...] about Third Trip to the Doctor Today for Sinuses
The Wall Street Journal and the New York Times do an excellent job of running several stories on ME/CFS throughout the year. I wanted to post a few excerpts and links to three recent articles that were just out by these two … [Read more...] about ME/CFS Covered Again In WSJ & New York Times
PANDORA & the ME/CFS Worldwide Patient Alliance kicked off the "Doctors Need to Know" Campaign on March 1st and it runs through March 15th and every ME/CFS patient is needed to get involved! As a chronic illness … [Read more...] about Doctors Need to Know Campaign
.. Finding Footwear With Fibromyalgia To deal with my foot pain, the number one thing I look for in shoes is a good amount of cushion. I used to like a hard-soled shoe like Birkenstocks, but I can't tolerate those at … [Read more...] about ME/CFS & Fibromyalgia Around the Web
This post is inspired by a new friend that I have recently made in California. I met a woman on Facebook who has CFS and who also believes she has Interstitial Cystitis. She has been sick for a long time and she found me … [Read more...] about The Bond Between CFS & Fibromyalgia Patients
I have just completed 20 days of antibiotics, 10 days of antibiotics that the doctor says they reserve for the "big gun" infections, and guess what? I'm still sick. I don't feel as bad as I did, but I am still not well and … [Read more...] about Sinus Infection/Chronic Sinusitis & Other Problems Still Flaring
Lack of sleep, and the hazy, uncontrollable, unrelenting exhaustion that zaps every bit of energy from my body - a CFS flare. It has taken over my body, mind and soul and I feel it in everything I try to do and it is in … [Read more...] about ME/CFS Makes Everyday Life Overwhelming
I am normally not a very emotional person and I don't cry a lot. My son and I were just talking about crying the other week and I told him that it was okay to cry and he said, "But mom, you don't cry". I told him I have cried … [Read more...] about Breakdown At Doctor’s Office Yesterday – Maybe A Breakthrough?
I have just finished reading Parting the Fog: The Personal Side of Fibromyalgia/Chronic Fatigue Syndrome by Sue Jones and there was a part in the book that really struck a chord with me. It is the chapter where Sue talks … [Read more...] about Who Has Stood By You & Your Chronic Illness?