I have been noticing a growing trend lately among CFS & Fibromyalgia communities where discontent and drama are becoming as regular as if I were watching a soap opera on television. What is happening to our once united … [Read more...] about When Did the CFS & Fibro Community Become So Ungrateful?
Awareness
ME/CFS Patient Alliance Run First Ever Virus/Blood Supply Ad
The ME/CFS Worldwide Patient Alliance has run the first-ever 1/2 page ad that was published in the Washington Post on December 6th. The ad that was published (you can click HERE to see the full version) received 51% of the … [Read more...] about ME/CFS Patient Alliance Run First Ever Virus/Blood Supply Ad
Celebrate IC Awareness Month by Joining the IC Facebook Causes Movement!
October is IC Awareness Month and you can help celebrate by joining the IC Social Networking Facebook Group and the Facebook Causes Movement sponsored by the Interstitial Cystitis Association. A little about these … [Read more...] about Celebrate IC Awareness Month by Joining the IC Facebook Causes Movement!
ME/CFS XMRV Demo Video: One Woman Protest In Washington, D.C.
A sufferer of ME/CFS for 20 years, Rivka went to Washington, DC, along with her mom, to raise awareness and get attention for research funding for ME/CFS. Here is Rivka's message that you will hear in the video … [Read more...] about ME/CFS XMRV Demo Video: One Woman Protest In Washington, D.C.
‘All Wheels 4 Fibromyalgia’ – 2010 Race Across America
I wanted to make sure I posted the following information I received from the National Fibromyalgia Association on an event that is called "All Wheels 4 Fibromyalgia". Four cyclists travel 3,000 miles in 6 days to raise … [Read more...] about ‘All Wheels 4 Fibromyalgia’ – 2010 Race Across America
Make Fibromyalgia Visible – May 12th
Below is an excerpt from a press release on PR Web regarding Fibromyalgia Awareness Day on May 12th. Please go the PR Web site and read the entire article... Make Fibromyalgia Visible May 12 The National Fibromyalgia … [Read more...] about Make Fibromyalgia Visible – May 12th
Virtual Lobby Day for ME/CFS Awareness Begins May 10th
I truly believe that as ME/CFS patients it is our responsibility to get the word out and raise as much awareness for this disease as possible. The CFIDS Association has made it easy for us to do so with their Virtual Lobby … [Read more...] about Virtual Lobby Day for ME/CFS Awareness Begins May 10th
Woman’s Day Covers ME/CFS
Ever since news of the XMRV research was made public, all of a sudden Chronic Fatigue Syndrome is big news. Here is another article on ME/CFS by Woman's Day. I've included an excerpt and the link for your viewing … [Read more...] about Woman’s Day Covers ME/CFS
ME/CFS & XMRV To Be Featured On Dr. Oz Show
The Dr. Oz television show will be discussing on their December 3rd show ME/CFS & XMRV. To view local listing times for your area, please visit the Dr. Oz website. I hope that the Dr. Oz show will give ME/CFS and XMRV … [Read more...] about ME/CFS & XMRV To Be Featured On Dr. Oz Show