Story On the First Patient to Die from ME/CFS In UK

This video is about the death of a UK woman who, on her death certificate, had ME/CFS listed as the cause.  She was put into a mental hospital because doctors believed that her illness was mental and not physical.

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  1. I am shocked… Living with ME myself for 19 years and thank God I am not in this bad condition but still very exhausted and in pain. Because the unability of the doctors to understand and believe me I force myself to go over my boundries time and time again which makes me more ill and fragile. I am going in a rehabilitation treatment this august and I hope they can teach me to move around more with this illness and handle it better so I can live again.

    A candle for Sofia and all the other people who suffer from this terrible illness.

    Karin, The Netherlands

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