The CFIDS Association has reported that a second UK XMRV study, recently published in Retrovirology, has come up showing negative results. As we all know, the UK has a really negative attitude towards anything related to Chronic Fatigue Syndrome. From the emails and other information I get from UK CFS patients, it’s like talking to people who are where we were 20 years ago with CFS research and information.
As you all know, I am not a doctor and I don’t try to pretend that I understand all of the information on these XMRV studies, so I will include an excerpt from Suzanne Vernon of the CFIDS Association and her thoughts on this latest study. You can read all of the information on the study at the Retrovirology link I provided above and you can read Suzanne Vernon’s comments and response to this study at this link: Second XMRV Negative Study …Still In Search of a Proper and Robust Replication Study.
Until methods are standardized and the scientific community is provided information about the specific characteristics of the CFS subjects (and controls) who tested positive in the Science paper, be prepared to read more negative studies. Hopefully the Science investigators will make this information available before interest in XMRV being associated with CFS fades and becomes yet another foiled attempt at solving CFS. Achieving scientific consensus on the role of XMRV in CFS certainly warrants more research and greater collaboration, as do so many other important discoveries being made.