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Chronic Fatigue Syndrome, Fibromyalgia, and IC Disease

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You are here: Home / Sandy's Journey / FF News / Please Sign The Guestbook!

Please Sign The Guestbook!

11 Comments

I added a new feature today – you can click on the Guestbook page above or you can click here to go there directly and leave me a comment.  This site is growing with page views and I would love to hear from some of you who stop by occasionally and on a regular basis.

Filed Under: FF News Tagged With: Fighting Fatigue Guestbook

Reader Interactions

Comments

  1. Eileen, Clarksburg, TN says

    June 20, 2008 at 12:12 pm

    So happy to have found your website! WHERE can I take the exercise capacity test? Losing everything, still rejected by SS.
    HELP!!!!!!!!

    Reply
  2. Sandy Robinson says

    June 20, 2008 at 8:27 pm

    Hi Eileen! When I had the exercise test done it was done at the Fibromyalgia and Fatigue Centers. There are several clinics across the U.S.

    Reply
  3. Amiee Mast says

    July 1, 2008 at 5:57 pm

    Thanks for the insight. I have CFS and or fibromyalgia and am trying to get a handle on it before it controls my life.

    Reply
  4. Belinda Fultz says

    July 31, 2008 at 2:00 pm

    WOW!!!! This is a wonderful site. You have done a fantastic job putting together all these resources, and you did it all dealing with everthing that goes with our shared illnessess. I am glad you are focussing your energy on helping so many other people. THANK YOU. and God bless you. May you have a day with less pain, and more progress.

    Reply
  5. Kathy Love says

    October 14, 2008 at 6:43 pm

    Your site has lots of good information. I love how you have made it so interactive. I also have fought chronic fatigue and fibromyalgia for many years. It is always wonderful to find others who understand and get new ideas.

    Reply
  6. Judith Koch says

    October 20, 2008 at 7:12 pm

    Hi:

    I have an interesting situation of which you might want to help spread the word.

    I am essentially giving away a DVD that teaches massage & bodywork techniques specifically for fibromyaglia. I produced this DVD to use for home study massage therapy CEU courses. When I went to have some made, the producer goofed and printed 3000 of them when I ordered 1000 of them, and since they were useless to him, he gave them to me at a firesale price. As such, I’ve got a couple thousand DVDs that normally sell for $59.95 ($199 if massage therapists are taking it as part of the home study course).

    I’m willing to let them go for free, with a small donation to cover the padded shipping envelope, postage, and the small fee he made me pay. For cash, check, or money order, $8 will cover everything. For credit card, to cover the fees that credit card companies charge, it would have to be $9.

    If you think people would be interested, please help spread the word. They can find more about the information on the DVD by visiting http://www.fibromyalgiahelp.com but they cannot order through that website or they will be charged the regular price of $59.95 plus shipping. The DVD covers many different methods to relieve muscle pain, plus lots of other ideas like aromatherapy, hydrotherapy, reflexology for PMS. Out of all the courses I’ve produced, I’ve gotten more success stories and kudos for this one. I’ve never made it available to the general public, just to massage therapists, but I’ve got to do something with this huge stack of boxes full of DVDs.

    If interested, people can contact me by email at massage@hughes.net, or they can mail a check or money order to Judith Koch, PO Box 520, Springville, CA 93265. If they wish to order by credit card, they can call me at 559-539-3851.

    Thanks for helping to spread the word. Please feel free to forward this information to anyone who might benefit.

    Judith Koch, Director of Education
    Institute of Somatic Therapy

    Reply
  7. Amy K says

    November 9, 2008 at 3:14 am

    I am very happy to have found your site and blog. I am a person challenged with chronic pain and fatigue due to Fibromyalgia. I am actively involved in a chronic pain support group web-site called “Living Whole with Chronic Pain Network” at http://www.wholelifeliving@ning.com. Please check it out if you get a chance! I look forward to delving into your research, blog posts, resources, etc. Thank you for providing a blessing here to many who suffer!
    God bless you,
    Amy

    Reply
  8. Amy K says

    November 9, 2008 at 3:17 am

    Correction: the website address is http://wholelifeliving.ning.com

    Reply
  9. John says

    February 16, 2009 at 12:26 am

    Thank you for all the great information. I’ll be coming back often to try and read everything.

    Reply
  10. Undiagnosed says

    February 24, 2009 at 6:48 pm

    You have some really fantastic articles here, keep up the great work ! I’ve bookmarked your website for future reference.

    Reply
  11. CaptainFreddy says

    December 28, 2009 at 9:58 am

    Hi everyone,

    My name is Freddy and I’ve wasted nearly a month of my life on this place 😉 I found it after being recommended by a few friends who have been hanging out here for quite some time.

    I am a writer, graphics artist, photographer and just about anything else that comes up around the office. Aside from the above interests i’m really into scifi as I know that is so much more out there to be discovered, and a feeling that the universe is just teaming with life.

    Well, I hope that I get to know more people here, share some experience and start learning. Have a greay day!

    Reply

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