This morning my husband took me to see the endocrinologist and I thought this day would never get here. Finally – I’m going to get some help and relief – and I am, but I’m not going to feel better immediately. The endocrinologist listened to everything that has been going on for the past 16 days, all of the symptoms, about the doctor’s visits and the ER visits, and the blood tests, and he actually listened and wanted to know what questions I wanted answered.
The first thing he told me was that my T3 hormone level is very high. The T3 level is supposed to be 76 – 181 and mine is over 300. He wanted to know how long I have been on the thyroid medication I am currently taking and I told him for 5 years. I was put on the T3 by the doctors at the Fibro & Fatigue Centers in Philadelphia when I was getting treatment there. He said there was two problems with this type of medication. The first problem is that T3 should never be prescribed alone – it should always be prescribed along with T4 – like in a synthroid medication. He also said that compound medications like the T3 I have been taking are not quality controlled so one time the prescription can be weak, the next time it can be very strong. He said my symptoms are coming from too much thyroid and that this latest batch they made up is probably way too strong.
He also said that my sugar is a little high – not anything to be really concerned about yet but the fact that I hadn’t eaten for 3 days when my blood tests were done and my sugar was still a little high suggests that my sugar was probably pretty high when all of this started. He told me to throw out the T3 compound and he started me on 100 mcg of Synthroid. He also did some more blood work to check my sugar and some other things and took a urine sample.
I asked him about the hypercalcemia on the blood test. He said the level was so mild on the blood test that it would not be causing the type of severe symptoms that I was having. He is pretty positive that it is the excess thyroid hormone and the elevated sugar working on my kidneys that is causing that problem there. When Bill and I got home, I checked the prescription date on the T3 and I got it on 6/2 and I started having all of these symptoms on 6/6 so everything is starting to make sense.
I go back to see him in a month and hopefully I will be feeling somewhat better by that time. I am happy that I am getting some answers and that he did not blame everything on CFS or Fibromyalgia, like so many doctors do. He believed me when I said this was not the same as either one of those. I came home from the doctor’s office and slept most of the day then because my mom has our son for a couple of days. That has been a big help for me in getting some rest.