I find that now that I'm getting older, I am never quite sure if the symptoms I am experiencing are due to ME/CFS or if they are pre-menopausal symptoms. My doctor had told me that I was starting to go through the … [Read more...] about Gynecological Concerns In ME/CFS Women
The IC Network is starting a series of classes and workshops called "The Bladder Academy". The purpose of these classes and workshops is to help IC patients learn more about the disease, treatment options, self-help … [Read more...] about The IC Network Introduces “The Bladder Academy”
June 6th is the Day of Visiblity for invisible chronic illnesses. Please watch the video, visit the Invisible Diseases website, make or download cards, and do your part to help! If everyone of us suffering from chronic … [Read more...] about Day of Invisibility – Please Watch Video & Spread the Word!
I have been seeing a lot of stories on television lately about people who are using marijuana for medical purposes, particularly pain. Just today I read an article on Health.com that medical marijuana mey help fibromyalgia … [Read more...] about Would You Use Marijuana To Treat Fibromyalgia Pain?
The 2010 ICA Capitol Hill Walk will be held on Thursday, March 25, 2010 from 8 a.m. - 4:30 p.m. in Washington, D.C. Thanks to the ICA for sending out the following information: Calling all IC patients, caregivers, … [Read more...] about 2010 ICA Capitol Hill Walk
There is a new clinical trial that is currently recruiting patients who suffer from Interstitial Cystitis with generalized vulvodynia. The purpose of the clinical trial (per the Clinical Trials.gov website): In order to … [Read more...] about New Clinical Trial For IC Patients with Vulvodynia Patients
For the past month, I have been getting extremely sick at least once or twice a week on my stomach - but I'm not throwing up. I feel like I have to vomit, but I can't get anything to come out. I started having severe pains … [Read more...] about GERD, ME/CFS & Fibromyalgia Relationship
Chronic Fatigue Syndrome patients suffer from pain as well as Fibromyalgia patients. Sometimes it can be hard for patients with both to know whether their pain is coming from the Fibromyalgia or the ME/CFS. For me, I can … [Read more...] about ME/CFS Pain & Fibromyalgia Pain – Can You Distinguish Between the Two?
Italian researchers have reported through a new study that they have "direct evidence" for central sensitization in Interstitial Cystitis patients. Central sensitization—essentially amplification of pain signals in the … [Read more...] about Study Reveals IC Patients Are More Sensitive to Pain
I have been working really hard on trying to cut gluten out of my daily diet. I admit that I occasionally will have something with gluten, when a major craving hits, but with only a few minor exceptions, I have done very … [Read more...] about Update On Gluten-Free Foods I Have Found & Like