Connie from Brain Foggles commented on this site and while I was reading over her blog, I saw that she has Myasthenia Gravis (MG). I had never heard of MG before this, so I was interested to go and find out more about it.
Myasthenia Gravis means grave muscular weakness. According to the MGFA Foundation of America, the most common form of MG is a chronic autoimmune neuromuscular disorder that is characterized by fluctuating weakness of the voluntary muscle groups.
Approximatey 20 people out of every 100,000 are afflicted with this illness. It is believed that the illness is underdiagnosed, so it’s possible the actual number of MG sufferers is higher.
Common symptoms of MG are blurred/double vision, a drooping eyelid, slurred speech, chewing/swallowing difficulty, arm and leg weakness, breathing difficulties, chronic muscle fatigue.
There are different tests done to determine the diagnosis of MG. You can read more information on that here:
http://www.myasthenia.org/amg_testsdiagnostics.cfm
Thanks for the linky love! Yes I do have MG and other autoimmune diseases. Please feel free to ask me about MG. June is actually MG awareness month.
I plan on blogging about that soon. Thanks for spreading the word about this disease.
I have sero negative non musk MG . It took about 10 years and near death to diagnose it. I am on many meds…IVIG which helps but I always get aseptic meningitis. The jeat is killing me as well as stress and trying to keep working. I have lost all libido surprise…and am trying accupunture. I think it is either making it worse, or it is the heat. I am having to back off prednisone due to side effects and that puts me back. I ‘ve had a thymectomy and I am just losing my camel straw. I can not do housework..have had a hard time with getting catastrophic leave and have no ability to have fun for lack of better words.
No one knows what it is and sometimes you look “good so they think nothing is wrong. I feel like death . I was told to quit but cannot and have no support from spouse who is ill with type 1 diabetes and has had stroke, heart stents, pad stents, emotional and verbal problems …I am wondering if you have any news on sero negative or MG and ester antisense drugs to try soon. Guess I am desperate .
Thanks for listening.
Joan:
Google Revimmune + myasthenia; this looks like a potential treatment which could greatly improve or cure MG.
I hope you ladies who have this illness can find some relief and help! I never had even heard of this until I read about it on Connie’s blog, http://shawnsbidness.com/blog/