With my ME/CFS flare this week I have been having those old familiar hot flashes or hot spells that I have been known to get over the years since becoming ill. These are different than the hot flashes I get around my period. I still wonder sometimes though if it isn’t a combination of both perimenopause and ME/CFS. My cycle ended over the weekend and I have been having these hot spells all week so I really believe this time it is due to the ME/CFS flare.
I wish I could find something that would help this very annoying symptom. It gets me awake at night, keeps me awake during the day when my body is desperately begging for sleep and is just overall miserable.
The hot flashes in ME/CFS is due to poor functioning of the autonomic nervous system. This includes controlling of the blood pressure, pulse and sweating. This is all controlled by the hypothalamus. One minute I will be shivering and covering up with all of the blankets I can find – the next I’m stripping down to as little as possible because I’m so hot.
I’ve tried Evening Primrose Oil & Black Cohosh but it is not helping with the hot flashes from ME/CFS. I was wondering if any of you have tried anything with success that you could share?