ME/CFS & Fibromyalgia News Around the Web

Gut Inflammation In Chronic Fatigue Syndrome

Chronic fatigue syndrome (CFS) is a debilitating disease characterized by unexplained disabling fatigue and a combination of accompanying symptoms the pathology of which is incompletely understood. Many CFS patients complain of gut dysfunction. In fact, patients with CFS are more likely to report a previous diagnosis of irritable bowel syndrome (IBS), a common functional disorder of the gut, and experience IBS-related symptoms. Recently, evidence for interactions between the intestinal microbiota, mucosal barrier function, and the immune system have been shown to play a role in the disorder’s pathogenesis.

Nutrition & Metabolism

Need Fibromyalgia Pain Relief? Try Yoga

One of the newest ways to fight fibromyalgia is an age-old health technique. Yoga, the now-trendy ancient Indian practice, improves fibromyalgia symptoms such as pain, anxiety and fatigue, according to a 2010 study from Oregon Health and Science University in Portland. A weekly two-hour program of low-impact poses, meditation and breathing exercises helped get fibromyalgia sufferers moving and also improved sleep and mood, according to James Carson, Ph.D., lead researcher and an assistant professor of anesthesiology and perioperative medicine in the OHSU School of Medicine.


Get Well With Brielle

So after that doctor appointment where I was told I needed to “figure out how to get myself better” I decided I had nothing to lose and searched my health benefits for acupuncture coverage. I had a successful experience with it following a car accident when I was 16 years-old that cured me of migraines the crash had left me with. There were no insurance benefits, per say, but a few acupuncturists had a reduced-rate they offered us policy-holders. I called 1 that was in close proximity to my house and set up an appointment. I shuffled in to said appointment a few days later in my usual pathetic fashion of that time; sweats, slippers, hair in a bun with no makeup on, late as usual, glad I had easily found a parking space right across the street.

Chronicles of Fibromyalgia

Treating Sleep Problems in Fibromyalgia & Chronic Fatigue Syndrome

Those of us with fibromyalgia and chronic fatigue syndrome usually have problems with sleep, and no matter what TV drug commercials may say, treating them is rarely as simple as popping a pill. Many of us have recognized sleep disorders, while others are diagnosed only with the vague term “unrefreshing sleep.” Studies show that disordered sleep rhythm is common in us, especially something called alpha-wave intrusion — basically, alpha brain waves, which are the most alert form, inexplicably show up in the deepest stages of sleep. Some of us sleep very little, some of us sleep for huge amounts of time, but very few of us ever feel rested and refreshed upon awakening.  FM & CF

Fibromyalgia & Obesity: Cause, Effect or Vicious Cycle?

Yet another study has pointed a finger at something pretty obvious — a lot of us with fibromyalgia are obese. Researchers say the obese participants had more pain, worse sleep, less sleep and poorer flexibility. It’s not surprising that, as a group, we’re overweight: most of us are far less active that we used to be; some of us take medications that cause weight gain; a lot of doctors and researchers believe we have some sort of metabolic problem; we’re prone to sleep disorders, and a sleep-deprived body won’t lose weight. So yes, we get fat.  FM & CF

Fibromyalgia: I Have It… Now What?

“…I was told by my doctor that I have fibromyalgia and I don’t know what to do. I’ve noticed that over the last couple of years that I’ve been having a progressively harder time doing simple tasks that I used to take for granted like folding laundry, ironing, cooking, cutting up vegetables, sewing, driving a car, holding a book, and even sleeping has become very challenging. I have to take many breaks while I’m doing these tasks and even take a nap in the middle of the day. I never used to have to do that! My family doctor initially seemed interested in helping me.

Dr. Broussard’s Space

CFS – Treatments Which Are Not Worth Trying

This is positively harmful when CFS is active. I find it quite extraordinary that so many doctors seem to advocate this as a treatment. It is as if they are unable to distinguish between CFS and lack of fitness! Let’s face it, if graded exercise worked then the diagnosis could not possibly be CFS. The only possible explanation I can think of as to why this has stuck in the medical folklore is that after a physician has recommended this to the CFS patient, the latter never bothers to attend again for useless advice. The doctor then believes he has cured the patient because they don’t come back. Has anybody else got any better explanation?

FM/CFS/ME Resources

Sensory Overload: Sources and Strategies

Do you experience confusion, fatigue or pain that you can’t explain? One possible cause is sensory overload: receiving more sensory information than your body can process.  There are many causes of overload, including sensory information coming from several sources at the same time (e.g. TV on when having a conversation), noisy environments, fluorescent lighting, socializing in large groups, being touched or the feel of clothes on the skin, weather changes, strong aromas and sometimes specific people.

Fibromyalgia Network on Facebook

Can Turmeric Relieve Pain? One Doctor’s Opinion

Four in the morning, four more at night. That’s eight big mustard-yellow capsules every day. They contain nothing but turmeric, a spice. But for Jerry, they are medicine. He loves the stuff — says it changed his life.  Now this sort of thing is not uncommon; I’d guess 20% to 30% of my patients are into some type of supplements or “nutriceuticals.” But Jerry stands out. He’s a conservative, older guy from that generation of men who were most definitely not “in touch with” their bodies. 
Read more:,8599,1910028-1,00.html#ixzz1BMd1dDM6

Time Health & Science

The Chrysalis Effect Recap: Session Five In Brief by Billygean

Session five was all about the thyroid and the adrenals.I had no idea of the role these would play in my recovery.  In some people with CFS, specialists think the adrenal tap has been left on. We are designed to have short bursts of adrenaline and then relax once the danger has disappeared. However modern life means we are often switched ‘on’. For example when I was ill, I was so bored that I was always doing something, even when lying down. I would also get so excited when finally leaving the house not to mention stressed about any symptoms I was experiencing that I was undoubtedly experiencing a rush of adrenaline.

Get Your Life Back From M.E.

Early Events in Retrovirus XMRV Infection of the Wild-Derived Mouse

A novel gammaretrovirus, xenotropic murine leukemia virus-related virus (XMRV), has been identified in patients with prostate cancer and in patients with chronic fatigue syndromes. Standard Mus musculus laboratory mice lack a functional XPR1 receptor for XMRV and are therefore not a suitable model for the virus. In contrast, Gairdner’s shrew-mice (Mus pahari) do express functional XPR1. To determine whether Mus pahari could serve as a model for XMRV, primary Mus pahari fibroblasts and mice were infected with cell-free XMRV. Infection of cells in vitro resulted in XMRV Gag expression and the production of XMRV virions. After intraperitoneal injection of XMRV into Mus pahari mice, XMRV proviral DNA could be detected in spleen, blood, and brain.

Journal of Virology

Mission 2011:  Bend Down, Not Over

I am so excited to get started reporting to you about my Mission 2011.  As I mentioned last week, January is the month that I am focusing on reviewing my progress on making activities fibro-friendly by modifying how I physically approach tasks.  Over the past two weeks I have been more closely observing my body mechanics to see where I need reminders and improvement. The first thing that literally jumped out at me is that I bend over from the waist way too much.

Oh My Aches & Pains!

Medical Conditions Aren’t All Private, Court Rules

A New York City music teacher whose school accused her of “theft of services” for taking repeated sick days cannot sue after the city school district’s board of education made her medical condition, fibromyalgia, public knowledge, the 2nd Circuit ruled. Privacy laws do not protect the chronic pain disorder as they protect conditions that carry social stigma like HIV, the court found.  Dorrit Matson’s supervisors at the Bayard Rustin Educational Complex began investigating her medical condition when she made multiple sick day requests between 2003 and 2005, including sick leave that caused her to miss a school orchestra concert.

Courthouse News Service

We Are In The Same Boat

“We may live on separate shores, but in the end, we’re all in the same boat”. Isn’t this the truth? I enjoy communicating on Facebook. I keep up with my friends and family. Part of my friends group, are those with chronic diseases like Fibromyalgia, Chronic Fatigue, Lupus, Lime Disease, Sjogrens and Rheumatoid Arthritis, just to name a few.

Deb’s Fibromyalgia Blog

Monday – busy lesson day

I had 3 lessons today. Little man, Acer, has a fever so he didn’t come for his lesson. I do hope he is going to be back to normal shortly. Bob and Calli had their lessons and both are doing very well. Bob has a 2 part invention by JS Bach and a Sonata by Mozart while Calli is learning Red River Valley on the piano. She is singing Country Gardens and Rainbow Connection. She is almost done with level 2 and almost ready to begin level 3. I am excited with how well she is doing. Bob did very well through the rough spots today. He is happy with his progress too. Basically it was a very nice musical day.

Life & Fibromyalgia

Neurontin AND Alcohol

I’ve realized lately that any desire I’ve had for a drink has been pretty much nill since around the time I started taking Neurontin. Before that I went through a phase where I was drinking quite regularly (often because it was the only thing that seemed to help my nerve pain). We have a “favorite bar” that we had become quite regular at for a while and as the summer progressed we were going less and less. I rarely seem to be in the mood to even have a drink and often when I do I find that it just doesn’t “sit well”. Tonight was no exception.

Counting My Spoons

If you liked this article, please share.
Share on Facebook0Tweet about this on TwitterShare on Google+0Share on StumbleUpon0Email this to someone

Join the Discussion.

We'd love to hear from you - leave a comment below