ME/CFS & Fibromyalgia News Around the Web

Cooking With Fibromyalgia & Chronic Fatigue Syndrome

It’s hard to avoid cooking, but I sure wish I could! I was OK with it before I had fibromyalgia, but now the very thought of it stresses me out. If I’m doing something really simple and familiar, cooking’s not too bad. When I have to keep track of multiple things, or go through a multi-step process, I can forget what I’m doing and get overwhelmed. When your family is waiting for dinner and you find yourself lost in the brain fog and on the verge of ruining it all, it can definitely trigger your anxiety! FM & CF

New Study Casts Doubt on Link Between Chronic Fatigue Syndrome and Human Retrovirus XMRV

A new study published on the British Medical Journal website casts doubt on recent claims that a human retrovirus known as XMRV is linked to chronic fatigue syndrome or ME (myalgic encephalitis). This is the third study to refute the original US study reporting the link. Chronic fatigue syndrome is a debilitating condition that affects millions of people worldwide with disabling physical and mental fatigue that does not improve with rest. Its causes remain unclear, but many people say their illness started after a viral infection.

Science Daily

Condition Requires Patience, Understanding

Fibromyalgia — is it real or is it simply an excuse to get out of work? Are those claiming to have this mysterious disease just down right lazy? These might be a couple of questions in which I might have asked if it were not for the fact that I am one of them. Yes, I am one of those excuse makers that everyone gets tired of hearing. Heck, I understand their frustration because I am tired of hearing myself saying, “I hurt too bad to go,” “I am just too tired to do that,” and “I can’t think clearly right now,” just to name a few.

Cumberland Times News

Effect of Intravenous Lidocaine on Manifestations of Fibromyalgia

A randomized, double-blind, comparative study was conducted on 30 patients. All patients received 25 mg amitriptyline. Group 1 (n = 15) received 125 mL of saline; group 2 (n = 15) received 240 mg lidocaine in 125 mL of saline once a week for 4 weeks. The following parameters were evaluated: clinical manifestations before and 4 weeks after treatment; pain intensity on a numerical scale.

Wiley InterScience

A Retrospective Review of the Sleep Characteristics in Patients with Chronic Fatigue Syndrome and Fibromyalgia

This study characterizes findings on sleep testing and Human Leukocyte Antigen (HLA) markers in a group of patients with fibromyalgia (FM) and chronic fatigue syndrome (CFS). One hundred eighteen patients seen in a general neurology practice over 5 years meeting standard clinical criteria for FM or CFS were analyzed retrospectively. Cases of untreated sleep apnea or restless legs syndrome were excluded prior to inclusion in this study.

Wiley InterScience

Tired of All This Some Days

Last night after my son went to bed, I finally had a moment to relax and enjoy some quality time with my honey… I checked my email, and was just ready to close up my laptop for the evening so we could watch American Idol and have some cuddle time when I was completely engulfed with this feeling of sadness… It hit me like a tonne of bricks, and it wasn’t triggered or brought on by anything specific… it just came out of nowhere…

Graceful Agony

New Suspect In Gulf War Syndrome

On February 26, 2010, the Veterans Affairs Department announced that it will re-examine the disability claims of thousands of Persian Gulf War veterans still suffering from the mysterious Gulf War illnesses two decades after the war ended. At a meeting of the Federal Advisory Committee on Gulf War Veteran’s Illnesses held yesterday in Washington, D.C., scientists from around the country presented their latest research to committee members searching for clues to this mysterious illness. Early in the meeting a new culprit emerged — “the other brain” — the non-electric portion of the brain composed of brain cells called glia.

The Huffington Post

The Voices of Fibromyalgia

People who suffer from fibromyalgia experience problems beyond the pain caused by their illness. Their condition is little understood and hard to explain, and often they are disbelieved by doctors. Even friends and loved ones may express skepticism toward the fibromyalgia sufferer, who, burdened with inexplicable pain, may cancel social plans, miss work and recoil from physical affection because it hurts too much.

The New York Times – Health

Life On Hold

Chronic illnesses such as fibromyalgia, chronic fatigue, cancer, lupus, multiple sclerosis, rheumatoid arthritis, Crohn’s disease, Epstein-Barre, Lyme disease, etc. sure can put a dent in your career/life plans. Things you took for granted are suddenly put on hold. You wonder, “Will I ever do _______________ again?”  You don’t often see the plus side of aging but there is one. Each day as you get older, you accumulate the richness of experience.

Rebuilding Wellness

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