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Chronic Fatigue Syndrome

Chronic Fatigue Syndrome, Fibromyalgia, and IC Disease

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ME/CFS

ENT Visit Today for Sinus Problems – What Now?

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ENT Visit Today for Sinus Problems – What Now?

I went and had my 2nd opinion on my sinus infecton problem this morning at the ENT specialist and now I'm more confused than ever. Sometimes I think 2nd opinions are just meant to confuse the heck out of us and are meant to … [Read more...] about ENT Visit Today for Sinus Problems – What Now?

Filed Under: ME/CFS, Sandy's Journey Tagged With: Chronic Sinusitis, ME/CFS, Sandy's Journey, Sinus Infection

Spinal Fluid Abnormalities Found In ME/CFS & Lyme Disease

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Spinal Fluid Abnormalities Found In ME/CFS & Lyme Disease

 A recent study may have found that there are measurable differences between the spinal fluid levels of ME/CFS patients, Lyme Disease patients, and the healthy control subjects used in the study.  Pooled cerebrospinal fluid … [Read more...] about Spinal Fluid Abnormalities Found In ME/CFS & Lyme Disease

Filed Under: Research Tagged With: Lyme Disease, ME/CFS, Research, Spinal Fluid in ME/CFS

Third Trip to the Doctor Today for Sinuses

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Today was my third trip in the last month to the doctor's office for the sinus infection that is stubbornly holding on. As the doctor was examining my ears, my sinuses, and my throat, she was in shock over how I still had the … [Read more...] about Third Trip to the Doctor Today for Sinuses

Filed Under: ME/CFS, Sandy's Journey Tagged With: Chronic Sinusitis, ME/CFS, prednisone, Sinus Infection

ME/CFS Covered Again In WSJ & New York Times

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ME/CFS Covered Again In WSJ & New York Times

The Wall Street Journal and the New York Times do an excellent job of running several stories on ME/CFS throughout the year. I wanted to post a few excerpts and links to three recent articles that were just out by these two … [Read more...] about ME/CFS Covered Again In WSJ & New York Times

Filed Under: ME/CFS Tagged With: ME/CFS

Doctors Need to Know Campaign

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PANDORA & the ME/CFS Worldwide Patient Alliance kicked off the "Doctors Need to Know" Campaign on March 1st and it runs through March 15th and every ME/CFS patient is needed to get involved!  As a chronic illness … [Read more...] about Doctors Need to Know Campaign

Filed Under: Awareness Tagged With: Doctors Need To Know, ME/CFS, ME/CFS Worldwide Alliance, P.A.N.D.O.R.A.

ME/CFS & Fibromyalgia Around the Web

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.. Finding Footwear With Fibromyalgia To deal with my foot pain, the number one thing I look for in shoes is a good amount of cushion. I used to like a hard-soled shoe like Birkenstocks, but I can't tolerate those at … [Read more...] about ME/CFS & Fibromyalgia Around the Web

Filed Under: Fibromyalgia, ME/CFS Tagged With: Fibromyalgia, ME/CFS

Sinus Infection/Chronic Sinusitis & Other Problems Still Flaring

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I have just completed 20 days of antibiotics, 10 days of antibiotics that the doctor says they reserve for the "big gun" infections, and guess what?  I'm still sick.  I don't feel as bad as I did, but I am still not well and … [Read more...] about Sinus Infection/Chronic Sinusitis & Other Problems Still Flaring

Filed Under: ME/CFS, Sandy's Journey Tagged With: Chronic Sinusitis, ME/CFS, Sandy's Journey, Sinus Infection

Fighting Back Challenge Poem Submission

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Fighting Back Challenge Poem Submission

I have written a poem to be included as part of the Fighting Fatigue Fighting Back Challenge website and I hope you all enjoy it!  It is called "Out of the Rain".  Please click HERE to read it.  Don't forget to submit your … [Read more...] about Fighting Back Challenge Poem Submission

Filed Under: Awareness, Fibromyalgia Awareness, Fighting Back Challenge

ME/CFS Makes Everyday Life Overwhelming

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ME/CFS Makes Everyday Life Overwhelming

Lack of sleep, and the hazy, uncontrollable, unrelenting exhaustion that zaps every bit of energy from my body - a CFS flare.  It has taken over my body, mind and soul and I feel it in everything I try to do and it is in … [Read more...] about ME/CFS Makes Everyday Life Overwhelming

Filed Under: ME/CFS, Sandy's Journey Tagged With: Interstitial Cystitis, ME/CFS

Breakdown At Doctor’s Office Yesterday – Maybe A Breakthrough?

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Breakdown At Doctor’s Office Yesterday – Maybe A Breakthrough?

I am normally not a very emotional person and I don't cry a lot. My son and I were just talking about crying the other week and I told him that it was okay to cry and he said, "But mom, you don't cry". I told him I have cried … [Read more...] about Breakdown At Doctor’s Office Yesterday – Maybe A Breakthrough?

Filed Under: Fibromyalgia, Interstitial Cystitis, ME/CFS, Sandy's Journey Tagged With: Fibromyalgia, Interstitial Cystitis, ME/CFS, Sandy's Journey

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