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Awareness

May 12th is International CFS Awareness Day: What You Can Do

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Each year, May 12th is designated as International CFS Awareness Day.  So far this year I have not seen anything talking about CFS Awareness yet so I'm not sure what's going on there. Even though May is not here yet, I … [Read more...] about May 12th is International CFS Awareness Day: What You Can Do

Filed Under: Awareness Tagged With: Awareness, CFIDS Association, ME/CFS

Patients & Advocates Urged to Participate in Washington, D.C.

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The CFS Advisory Meeting scheduled for May 5th & 6th in Washington, D.C. is open to the public and patients and advocates are being urged to attend this open meeting. The meeting hours will be from 9 a.m. - 5 p.m. on … [Read more...] about Patients & Advocates Urged to Participate in Washington, D.C.

Filed Under: Awareness Tagged With: Awareness, CFS Advisory Committee Meeting, ME/CFS

Speak Out to Presidential Candidates About CFS

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The CFIDS Association is asking each of us with CFS to educate presidential candidates about CFS and its effects on the nation, our individual communities, and the patients themselves. The CFS community sent outalmost … [Read more...] about Speak Out to Presidential Candidates About CFS

Filed Under: Awareness Tagged With: Awareness, CFIDS Association, ME/CFS

Campaign For A Fair Name Website Launched

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Campaign For A Fair Name Website Launched

The new Campaign For A Fair Name website has recently launched! Last August, the campaign was started to give CFS a more "reputable" name, or a name that does the illness justice. There has been a lot of chatter around the … [Read more...] about Campaign For A Fair Name Website Launched

Filed Under: Awareness Tagged With: Campaign For A Fair Name, ME/CFS

My Cause: Working Together to Fight CFS

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My Cause:  Working Together to Fight CFS

The CFIDS Association of America has come up with a great way to raise money to fight CFS. They have a site called My Cause where PWCs can set up their own web page discussing their personal battle with CFS and raise funds at … [Read more...] about My Cause: Working Together to Fight CFS

Filed Under: Awareness Tagged With: Awareness, ME/CFS, My Cause

Educating the Medical Community On CFS

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If we want to be taken seriously with this illness, the medical community has to first have the tools necessary to help us. It's sad and unfortunate, but way too often are those very ill with CFS dismissed because either: a) … [Read more...] about Educating the Medical Community On CFS

Filed Under: Awareness Tagged With: Awareness, ME/CFS

CFS Advocacy In August

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Making the Most Of Advocacy In August from CFIDS Association of America You can click here to sign up and reserve your seat for the Webinar that will be held Tuesday, August 7th at 3:30 p.m. The August Congressional … [Read more...] about CFS Advocacy In August

Filed Under: Awareness Tagged With: Awareness, CFIDS Association, ME/CFS

CFIDS Association of America Celebrates 20 Years of Service

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The CFIDS Association of America is celebrating 20 years of service to researching and raising awareness for CFS. To celebrate their 20th anniversary, CFIDS Assocation of America is asking CFS patients to complete a short … [Read more...] about CFIDS Association of America Celebrates 20 Years of Service

Filed Under: Awareness Tagged With: Awareness, CFIDS Association, ME/CFS

CFIDS Association Posts Lobby Day Results

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The CFIDS Association of America reported last week that 80 advocates went to Washington, D.C. and took part in the training and meetings with Congress and Capital Hill staff members. In one day, these advocates conducted … [Read more...] about CFIDS Association Posts Lobby Day Results

Filed Under: Awareness Tagged With: Awareness, CFIDS Association, Lobby Day

Virtual Lobby Day Action #1

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Action #1 includes telling Congress why you could not be at the physical Lobby Day this year. Click on this link, fill out the sections noted, and send it off! If we ALL just do a LITTLE bit, great strides can be made … [Read more...] about Virtual Lobby Day Action #1

Filed Under: Awareness Tagged With: Awareness, ME/CFS, Virtual Lobby Day

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