Doctors Need to Know Campaign

PANDORA & the ME/CFS Worldwide Patient Alliance kicked off the "Doctors Need to Know" Campaign on March 1st and it runs through March 15th and every ME/CFS patient is needed to get involved!  As a … [Read more...]

Fighting Back Challenge Poem Submission

I have written a poem to be included as part of the Fighting Fatigue Fighting Back Challenge website and I hope you all enjoy it!  It is called "Out of the Rain".  Please click HERE to read … [Read more...]

ME/CFS Patient Alliance Run First Ever Virus/Blood Supply Ad

The ME/CFS Worldwide Patient Alliance has run the first-ever 1/2 page ad that was published in the Washington Post on December 6th.  The ad that was published (you can click HERE to see the full … [Read more...]

ME/CFS XMRV Demo Video: One Woman Protest In Washington, D.C.

A sufferer of ME/CFS for 20 years, Rivka went to Washington, DC, along with her mom, to raise awareness and get attention for research funding for ME/CFS. Here is Rivka's message that you will hear in … [Read more...]

Remember on Awareness Day: CFS & FM Are Family Diseases

In honor of CFS & Fibromyalgia Awareness Day tomorrow, I wanted to focus on how ME/CFS & Fibromyalgia are family diseases.  I know that as a patient myself, I have often got in the mode of … [Read more...]

Virtual Lobby Day for ME/CFS Awareness Begins May 10th

I truly believe that as ME/CFS patients it is our responsibility to get the word out and raise as much awareness for this disease as possible.  The CFIDS Association has made it easy for us to do so … [Read more...]

Press Release: Local Woman Fights Fatigue – One Post At A Time

I am sending out press releases to the local newspapers to help raise awareness for ME/CFS Awareness Day on May 12th.  I wanted to post a copy on here so that others can see how to write a press … [Read more...]

May Is ME/CFS Awareness & Fibromyalgia Awareness Day

It's almost that time of year again already!  Wednesday, May 12, 2010, is ME/CFS Awareness Day and May 15th is Fibromyalgia Awareness Day.  Every year, I try to do something to help raise awareness … [Read more...]

Day of Invisibility – Please Watch Video & Spread the Word!

June 6th is the Day of Visiblity for invisible chronic illnesses. Please watch the video, visit the Invisible Diseases website, make or download cards, and do your part to help! If everyone of us … [Read more...]

Discover Magazine Lists XMRV in ME/CFS In Top 100 Stories of 2009

This is one way for ME/CFS to get some awareness that we desperately need!  The Discover Magazine has listed the XMRV findings in ME/CFS as #55 in their Top 100 Stories of 2009.  To read the whole … [Read more...]

Woman’s Day Covers ME/CFS

Ever since news of the XMRV research was made public, all of a sudden Chronic Fatigue Syndrome is big news.  Here is another article on ME/CFS by Woman's Day.  I've included an excerpt and the link … [Read more...]

Dr. Oz On ME/CFS & XMRV

The Dr. Oz show covered ME/CFS today, XMRV & how it's related.  I missed it because I was at the ENT but I did find a link to the Dr. Oz website that does a great job of covering ME/CFS.  The … [Read more...]

New Yorks Times Reports On ME/CFS with Dr. Nancy Klimas

The New York Times has once again done a great job in covering ME/CFS.  There is a great Q & A article you can read by New York Time's science writer, Denise Grady.  The article includes answers … [Read more...]

ME/CFS & XMRV To Be Featured On Dr. Oz Show

The Dr. Oz television show will be discussing on their December 3rd show ME/CFS & XMRV.  To view local listing times for your area, please visit the Dr. Oz website.  I hope that the Dr. Oz show … [Read more...]

New ME/CFS Awareness Video…Please Watch

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