PANDORA & the ME/CFS Worldwide Patient Alliance kicked off the "Doctors Need to Know" Campaign on March 1st and it runs through March 15th and every ME/CFS patient is needed to get involved! As a chronic illness … [Read more...] about Doctors Need to Know Campaign
I have written a poem to be included as part of the Fighting Fatigue Fighting Back Challenge website and I hope you all enjoy it! It is called "Out of the Rain". Please click HERE to read it. Don't forget to submit your … [Read more...] about Fighting Back Challenge Poem Submission
The ME/CFS Worldwide Patient Alliance has run the first-ever 1/2 page ad that was published in the Washington Post on December 6th. The ad that was published (you can click HERE to see the full version) received 51% of the … [Read more...] about ME/CFS Patient Alliance Run First Ever Virus/Blood Supply Ad
A sufferer of ME/CFS for 20 years, Rivka went to Washington, DC, along with her mom, to raise awareness and get attention for research funding for ME/CFS. Here is Rivka's message that you will hear in the video … [Read more...] about ME/CFS XMRV Demo Video: One Woman Protest In Washington, D.C.
In honor of CFS & Fibromyalgia Awareness Day tomorrow, I wanted to focus on how ME/CFS & Fibromyalgia are family diseases. I know that as a patient myself, I have often got in the mode of thinking how ME/CFS affects … [Read more...] about Remember on Awareness Day: CFS & FM Are Family Diseases
I truly believe that as ME/CFS patients it is our responsibility to get the word out and raise as much awareness for this disease as possible. The CFIDS Association has made it easy for us to do so with their Virtual Lobby … [Read more...] about Virtual Lobby Day for ME/CFS Awareness Begins May 10th
I am sending out press releases to the local newspapers to help raise awareness for ME/CFS Awareness Day on May 12th. I wanted to post a copy on here so that others can see how to write a press release so you too can help … [Read more...] about Press Release: Local Woman Fights Fatigue – One Post At A Time
It's almost that time of year again already! Wednesday, May 12, 2010, is ME/CFS Awareness Day and May 15th is Fibromyalgia Awareness Day. Every year, I try to do something to help raise awareness for CFS & … [Read more...] about May Is ME/CFS Awareness & Fibromyalgia Awareness Day
June 6th is the Day of Visiblity for invisible chronic illnesses. Please watch the video, visit the Invisible Diseases website, make or download cards, and do your part to help! If everyone of us suffering from chronic … [Read more...] about Day of Invisibility – Please Watch Video & Spread the Word!
This is one way for ME/CFS to get some awareness that we desperately need! The Discover Magazine has listed the XMRV findings in ME/CFS as #55 in their Top 100 Stories of 2009. To read the whole article, please click here: … [Read more...] about Discover Magazine Lists XMRV in ME/CFS In Top 100 Stories of 2009