It’s almost that time of year again already! Wednesday, May 12, 2010, is ME/CFS Awareness Day and May 15th is Fibromyalgia Awareness Day. Every year, I try to do something to help raise awareness for CFS & Fibromyalgia. In the past I have done fundraisers, written press releases for the newspapers, contacted government officials, and donated money to organizations to help support CFS & Fibromyalgia research. This year I am going to once again send out letters to all of the local newspapers and I am planning to contact the local radio station to see if I can be on their morning show to talk about CFS & Fibromyalgia on Awareness Day.
The CFIDS Association has an annual Lobby Day on Capitol Hill where CFS patients get to talk to officials about CFS research. The National Fibromyalgia Association has a page on their website full of ways to help raise awareness for Fibromyalgia. Click HERE to check it out!
As CFS & FM patients, it is our responsibility to help raise awareness for these devestating illnesses. Most of us are physically unable to do a lot of things to help, but it takes only a minute to click a link and to send an email to your local government officials. We need to be heard loud and clear! We deserve better treatments, better physicians, and better care. If we want change, then we have to do something about it.
Thanks for the reminder!
Kathryn Stephens says
Thanks, Sandy, for the reminder…but, think May 12th is on a Thursday this year…no biggie, we’ll all be there and doing all we can to lobby and raise awareness.
I hope the CFSAC is this same week as May 12th! We can all go to the CFSAC and Lobby Day all in one week, and one airline ticket! YAY!