I give in now. It’s time to see the doctor again. My sleeping issues have continued to get worse and I am almost at my wits end. I have had sleep disturbances for years but they have slowly continued to get worse. I am on Trazadone but it doesn’t seem to work that well. When it does work, I feel likea total zombie the next day and still feel as though I didn’t sleep.
I have been a real mess lately and I know a lot of it is due to lack of sleep. This past Saturday night I was awake until after 5 a.m. Sunday morning. I had never went to sleep at all until sometime after that. ThenTuesday night I never did fall asleep – at all. I was a mess today but sleep still didn’t come. I would start to doze off and the phone would ring. A lot of times I will turn the phone off but I’m afraid to during the hours my son is in school in case they would need me to come get him if he gets sick or something happens.
Between lack of sleep, messed up hormones and CFS, I’m not a lot of fun to be around right now!
I can relate to that. My sleep aids usually only work for a few months or maybe a year before I have to return to the doctor. I’ve gone through melatonin, HTP-5, several different anti-depressants. Trazadone, which I tried for migraines last year, sent me to the hospital with severe stomach pains (which continued after I stopped the medication). Most recently, I would sleep 16 to 24 at a stretch at least once a week to make up for my inadequate sleep at night.
I recommend asking your doctor to get you into a sleep study, if you haven’t done one already. I got diagnosed with Restless Leg Syndrome this way in January. I was amazed to learn that those cramps in my legs were neither normal nor part of the Fibromyalgia. The medication for this has helped, so far–few sleepless nights, and I feel more rested in the morning.
The study can give your doctor a REAL sense of how you sleep and what he can do to help you. Good luck, Sandy.
Hi Robin, Thanks! I have had sleep studies done before BUT the problem was the rheumatologist I was seeing at the time kept saying he never got the results from the hospital and I kind of gave up on him because I lost trust in his ability to treat me. He acted as though he didn’t even care anymore – sleep studies was just one example of his incompetence.
Ack–I had a neurologist like that. He’s the one that gave me the Trazadone immediately after repeating the MRI and meds that my previous doctor had tried six months before. After I got an appointment with a chiropractor that specialized in Fibro treatment, I canceled my appointment with the neurologist and never looked back.
Dunno if this’ll help but its worth a try. I’ve got CFS and have some really bad sleep problems…instead of sleeping tablets (they did work but I didn’t want to take them for long) I’ve recently started taking a Valerian-Hops supplement and its really really helped so far. Dunno if it’ll help you but you wouldn’t loose anything by giving it a try!
Thanks for the advice! I’ll have to see if I can find that and give it a try!
Robin – I have been on Trazadone but if I take a full pill I end up with a bad hangover in the morning. Yuck.
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