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You are here: Home / Chronic Illnesses / Interstitial Cystitis / Interstitial Cystitis Study Looking For Recruits…

Interstitial Cystitis Study Looking For Recruits…

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The Boston Children’s Hospital is recruiting Interstitial Cystitis patients for testing to see if there are genetic markers involved in the disease.

Criteria for Inclusion:

  • Males and females ages 8 and older
  • Urinary frequency more than 1 time per hour, and/or
  • Dysuria (painful or difficult urination), and/or
  • Pelvic, suprapubic, or abdominal pain for 3 months or longer
  • Previously normal voiding pattern (normal retrograde voiding cystourethrogram if done). A cystourethrogram is an examination of the bladder and lower urinary tract using a special form of X-ray called fluoroscopy and a contrast medium.
  • Nocturia (need to get up in the night to urinate)
  • Normal urinary stream (by history)
  • No evidence of active bacterial urinary tract infection (no pyuria, & negative urinary culture for last 3 months)
  • Must be first degree relative of someone with above symptoms.

Exclusion Criteria:

  • Major structural/anatomical urinary tract abnormalities by ultrasound
  • Underlying inborn conditions
  • Severe constipation.

Location and Contact Information:

Children’s Hospital, Boston, Massachusetts
Program in Genomics/Harvard Neuromuscular Disease Project
Jordan Dimitrakov, MD, PhD, Principal Investigator

Please refer to study by ClinicalTrials.gov number NCT00389142
Contact Elicia Estrella, MS, CGC. Phone 617-919-4552. E-mail elicia.estrella@childrens.harvard.edu

Filed Under: Interstitial Cystitis Tagged With: Interstitial Cystitis

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