I had the first Interstitial Cystitis flare that I’ve had for a long time over the weekend. My husband and I were out of town doing a toy show & I spent most of yesterday running to the bathroom. My husband knew that I was having a flare even before I said anything. He reminded me that he hasn’t seen me go to the restroom that many times a day for quite some time. I’m a little concerned because I have to work today and on a holiday, we will be super busy and I won’t be able to run to the bathroom every few minutes if necessary.
I can’t tell yet if it’s going to be a bad IC day or not because I typically have a lot of urgency first thing in the morning then by the time I get to work I’m pretty good for a while. I also had a lot of pain in my bladder and in my lower back over the weekend that I have not experienced for some time. With a chronic illness like IC Disease, I sometimes forget how extreme the symptoms get and how excruciating the pain gets because I don’t experience it daily as I once did (thank God!).
When I do experience the severe symptoms, I wonder how I did it living like this every single day. I remember when I first became ill with Interstitial Cystitis I was on the phone crying and begging the urologist to please get me in earlier because I couldn’t take the pain any longer. However, my begging and pleading fell on deaf ears and I had to suffer even longer because they were not willing to squeeze me in sooner to find out what was wrong. I learned my lesson from that and I have become more firm when I need to see a doctor.
It is times like this when I realize why I need to be on disability and I want to kick myself for going back to work a few hours a week. Even though it is only a very minimal amount of working hours, it always seems that my CFS, Fibromyalgia or now IC will act up on those days and my shifts seem to drag on forever. We are supposed to go to a picnic at my sister’s after I get off work. I hope I am up to it. If not, my family is used to me canceling out on events.