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Chronic Fatigue Syndrome, Fibromyalgia, and IC Disease

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You are here: Home / Sandy's Journey / I Am Having Severe Headaches…

I Am Having Severe Headaches…

6 Comments

I have been feeling really bad since last Monday and I can’t seem to shake it. I normally have headaches that are pretty bad but for the last week they have been excruciating. My pain pills aren’t doing the trick and the only relief I get is by keeping my eyes closed and lying down without any noise or interruptions. Even the light from the computer screen makes my head pound and I feel as though I am going to throw up.

With Chronic Fatigue Syndrome, you never know from day to day or week to week how severe your symptoms may be. I feel so unmotivated right now and very uninspired and I hate feeling that way. I keep sleeping hoping that when I wake up I will feel better but so far that hasn’t worked.

What bothers me the most is how my illness affects my family, especially my son. It’s hard for him to understand that there are days when I just can’t function and that I can’t play, sing and have fun with him like we do when I am feeling somewhat normal.

We deal, though. We always manage to somehow and we make it through!

Filed Under: Sandy's Journey Tagged With: Headaches, Sandy's Journey

Reader Interactions

Comments

  1. FreeFromItAll says

    January 8, 2008 at 9:29 am

    (((HUGS))) No one could blame you for being uninspired with a headache like that on top of FM pain. I can’t even imagine it.

    Yes, we do manage to make it through. It’s not always pretty, but are more than survivors!!!

    Hang in there….this too shall pass.

    Reply
  2. Sophia says

    January 8, 2008 at 2:39 pm

    I’m so sorry you have been feeling so terrible. You will get through this like you always do. This will pass. Hugs to you.

    Reply
  3. Linda Tannenbaum says

    January 8, 2008 at 2:58 pm

    Hello,
    Our daugther was treated for “leaky gut” with Xifaxan and her headaches from CFS lessened significantly. You may wish to ask your doctor. IT is worth a try. 70% of her symptoms improved and her horrible headaches are few and far between now. Best of luck. I hope that you feel better soon!

    Reply
  4. sandy says

    January 8, 2008 at 6:00 pm

    Thanks everyone! I am feeling somewhat better now – I’m just feeling exhausted.

    Reply
  5. Barry says

    January 8, 2008 at 6:34 pm

    My partner has CFS and it has been a tough journey. I’ve researced this thing and found conflicting data. The one place that helped was the CDC web site (Centre for Disease Control).

    Have a look there (if you haven’t already). Jane has been having headaches, saliva gland problems, aches, sweats, rash, itching, pain, and low energy levels.

    What is working above all else is good nutrition. We have cut out additives, buy organic, drink heaps of water, I hide the coffee and wine and the improvement is apparent.

    She is doing things now that she couldn’t a year ago.

    She has a routine of good sleep, good food, variety and very low level exercise. It works. We also found that zink tablets improved her appetite. Don’t ask me why but it has.

    Good luck and as your other bloggers have said this will pass.

    Reply
  6. sandy says

    January 8, 2008 at 8:54 pm

    Hi Barry! Thanks for the information. I have read something about zinc before but I don’t remember where I found the article.

    I’m glad to hear that what you two are doing is working. Good nutrition is the foundation for everything, isn’t it?

    Reply

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