I have been feeling pretty good here lately but on the days that are really hot and humid I am reminded of my enemies – CFS & Fibromyalgia. Yesterday and today have been a couple of really rough days for me as far as the major fatigue and pain. It reminds me somewhat of the cold, wintery days when I can wake up and know that it is either snowing or really cold out because my body feels the temperature – it’s the same with the heat and the humidity. I woke up yesterday and this morning with a bad headache and in a lot of leg pain and I knew instantly that it was hot and humid outside.
This is what sucks about CFS & Fibromyalgia – it doesn’t seem to matter what time of year it is, what season it is – there is always something about the weather that affects our bodies and makes these illnesses flare up. Temperature sensitivity is a common problem among ME/CFS & Fibromyalgia patients. Some of us can’t tolerate the cold weather, some of us can’t tolerate the hot weather, and others of us (like me) can’t tolerate either. My fingers, ankles and legs will swell up like crazy in the heat and that just makes the pain that much worse. In the winter, I feel like the cold goes right to my bones.
I do not only feel more of the CFS exhaustion in the heat, but I also feel more of an overall sluggishness and tiredness that is different from the CFS exhaustion and fatigue we normally experience. I want to sleep more also. I have been having a lot of problems staying awake the past two days. The only thing that I have found that helps is to get a massage or take a dip in the pool at my sister-in-law’s house once the hottest part of the day is over. Today I was too tired to do even that. I keep the air-conditioner on and the house very cool but on days like this it doesn’t seem to cool as well.
I drink a lot of water but I always feel dehydrated on these really hot and humid days also. So in addition to being extra tired and wanting to sleep more, I then am constantly running to the bathroom because I’m drinking extra water and I end up wearing myself out more because I don’t get the rest I need because I’m up every 10 – 15 minutes. It’s a mess.
I would love to hear some suggestions as to what others do to keep their bodies cool and if you have found ways to keep your symptoms minimal during the summer heat.