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You are here: Home / ME/CFS / December News From the CFIDS Association

December News From the CFIDS Association

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  • The four million Americans who suffer from chronic fatigue syndrome (CFS) have new reason for hope today with the announcement of an unprecedented research program to help identify biomarkers to improve diagnosis and treatment of CFS. The announcement was made by the CFIDS Association of America, which is funding the program, called the Accelerate CFS Research Initiative.

Largest-Ever Chronic Fatigue Syndrome Research Initiative Announced

  • Earlier this year the CFIDS Association, with the help of Senator Tom Harkin (D-IA), hosted a congressional briefing on CFS in the Capitol building.  The briefing featured an introduction by Association president & CEO Kim McCleary and presentations from Anthony Komaroff, MD, Lucinda Bateman, MD, and NPR’s Scott Simon, who is a close friend of Seabiscuit author and CFS patient Laura Hillenbrand.

Video: Testimony from Congressional Briefing on CFS

  • People with CFS complain of different primary symptoms. Symptom severity can also vary considerably. Clinicians should query patients about which symptoms are most disruptive or disabling and tailor the management plan accordingly.

Print-and-Go Info On Managing CFS Symptoms

  • In November 1986 I went to see Dr. Shyam Singha in a cramped hotel room in mid-Manhattan. Tall and thin, he was a Sikh from India—a naturopath, osteopath, acupuncturist, and nutritionist. He had a restless energy, flowing black hair, and an ageless face. He could have been 40. Or 70. I had no idea.

Do It: A Defining Moment

  • Many of you have already stepped up to support the CFIDS Association of America financially this year. As we enter this season of giving, the CFIDSLink staff reflects on the generosity of the individual donors whose gifts–large and small–have enabled the CFIDS Association to serve the CFS community. We appreciate you all.

Real Stories, Real Gifts

Filed Under: ME/CFS Tagged With: CFIDS Association, ME/CFS

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