Enjoying the Summer with CFS & Fibromyalgia

Now that we have been having a heat wave here over the past few days, I have started getting in the mood for the summer.  I always look forward to the spring and early summer season because I tend to … [Read more...]

How Our Children Respond to CFS & Fibro Flares

  Children are very observant and they notice every single thing.  They know when something is not right and they know when we are not well.  They can sense it whether we try to fake it or not.  My … [Read more...]

It’s Not Negativity – It’s Called “Being Sick”!

The helpful advice of others, or what they presume to be helpful advice...don't we just love it?  It's always interesting to have people who have absolutely no clue as to what we go through everyday … [Read more...]

Filing A Complaint Under the Americans with Disabilities Act

 If you have been discriminated against by an employer because of your disaiblity, you can file a complaint with the EEOC under the Americans with Disabilities Act.  I covered much of Title I of … [Read more...]

Part 1: Americans with Disabilities Act

 Disabled employees are supposed to be protected by the Americans with Disabilities Act of 1990, but we all know that as chronically ill patients, we face discrimination on the job frequently due to … [Read more...]

Broken, Depression & Discrimination

   This week has been one of those weeks that could not end fast enough.  I am still slowly recovering from my flare and the longer it takes me to get over it, the more the depression sets in.  I put … [Read more...]

CFS & FM: Did You Push Yourself Too Hard In Life?

Earlier this week I posted about how as a society we have The I'll Sleep When I'm Dead Theory mentality when in actuality, it may be causing more harm than good, in my opinion.  How many times do we … [Read more...]

The Bond Between CFS & Fibromyalgia Patients

This post is inspired by a new friend that I have recently made in California. I met a woman on Facebook who has CFS and who also believes she has Interstitial Cystitis. She has been sick for a long … [Read more...]

Who Has Stood By You & Your Chronic Illness?

I have just finished reading Parting the Fog:  The Personal Side of Fibromyalgia/Chronic Fatigue Syndrome by Sue Jones and there was a part in the book that really struck a chord with me.  It is the … [Read more...]

Love, Understanding & Compassion Are A Two Way Street

As I sat down to write this post, I found that typing these words were not easy.  It was not easy because it's always a difficult thing to realize, then admit (especially to the world) one's own … [Read more...]

The Only Thing Predictiable About CFS & FM Is the Unpredictability

The unpredictable nature of ME/CFS & Fibromyalgia makes daily life a challenge for those of us who are trying to survive with the illnesses.  Never knowing from 0ne day to the next what is going … [Read more...]

My Dreams for the Future Do Not Include Disability

I have a huge goal and I know that many people will think that I am in denial about my illnesses but I'm not - I'm optimistic. Maybe a little too optimistic about this particular goal? I really have a … [Read more...]

Disability Proving to Be A Major Hindrance Around Every Corner

  Social Security Disability is not a process to be taken lightly. Many of us with CFS, Fibromyalgia, IC Disease or a combination of the three have found it necessary to go to these extreme … [Read more...]

Disability Myths Debunked In Invisible Illnesses & Chronic Pain

Disability and handicapped are two words that have come to haunt many invisible illness sufferers.  In case you are reading about chronic illness for the first time and you are wondering what in the … [Read more...]

If Tomorrow Never Comes….Then What?

I had a really bad CFS spell yesterday and most of today and once again, all of the things I wanted to get done I had to let go and push off until my next day off, which is Friday.  One of my major … [Read more...]