I haven’t been feeling very well the past few days and it’s not the normal ME/CFS stuff. The problem is I can’t tell if some of my symptoms are my Interstitial Cystitis acting up, or if there is something going on with my kidneys. I called the doctor’s office but they were no help and told me if I didn’t feel any better to go to the ER. I only go to the ER when things are REALLY bad because I hate sitting there for hours for them to just tell me it’s my IC Disease.
The other night I was downstairs putting laundry in the washer and I got this really urgent need to go urinate. That happens a lot with IC but I have never had the urgency be this bad. At the same time the urgency hit, a sharp pain hit me in my lower abdomen and in my pelvic area. When I went to the bathroom and urinated, I got this really bad pain that took my breath away and the first thing I thought was great – I think I have a bladder infection. When I stood up to flush the toilet, I noticed that my urine was brown. That scared me and I couldn’t figure out what it was coming from. I have never had brown urine before.
Then I started having a lot of flank pain (left & right side) and pain in my abdomen. The pressure and the pain in my lower abdomen and pelvic region continued but I didn’t have any more episodes of brown urine. I did, however, spend all night making several trips to the bathroom and now it’s Saturday and I am still having a lot of pain and the frequency has continued. I called the doctor’s office yesterday and they said they couldn’t really tell me anything without testing my urine but if I didn’t feel any better over the weekend to go to the hospital. They felt that just one instance of brown urine wasn’t anything to worry about. I didn’t actually get to talk to the doctor – I had to talk to a nurse so that wasn’t very reassuring.
In some ways it feels like my Interstitial Cystitis but in other ways it is different. I haven’t had anymore burning or pain when I urinate so that doesn’t sound like a UTI or bladder infection. Any thoughts?