Resources: Headache & Migraine Message Boards & Online Support
March 4, 2009 by Sandy Robinson
Filed under Message Boards/Online Support
Listed below are some online support groups and forums for headache & migraine sufferers.� If you have a forum/online group or know of one that is not listed below, please leave me a comment so I can add it.� This list is part of the Resources page here on Fighting Fatigue.
About.com Headaches & Migraines Support Forums
Brain Talk Headache & Migraine Community
iVillage Headaches & Migraines
Live Journal Daily Migraine Forum
New Daily Persistent Headache Support Group
ProHealth Migraine Message Boards
Ronda’s Migraine Page Discussion Forum
Web MD Headache & Migraine Message Boards
World Headache Alliance Discussion Board
Worldwide Cluster Headache Support Group
The CFS Headache
March 25, 2008 by Sandy Robinson
Filed under Symptoms
A special thanks to Somebody Heal Me for including this post as part of their Headache Blog Carnival.
One of the symptoms of CFS I have been unable to manage are the CFS headaches. CFS headaches are not like a normal headache, but they aren’t quite a migraine either. They can take turn into migraines at times but mainly it is the type of pain that is hard to describe.
I have headaches all day every day regardless of taking pain medication. The pain medication allows me to at least be able to function but there are days when the headaches still manage to take over. The pain is sharp and my eyes hurt so bad it’s impossible to turn on the light.
The pain in my head since last night has been frighteningly bad and as long as I lie still, keep my eyes shut and don’t move around I can tolerate the pain. It just seems lately that everything is falling apart around me regarding my CFS. I will go long periods of time where even though I have relapses I can still function somewhat. Now I’m going through a spell for quite a while where just doing something simple like typing this post is taking every drop of energy I have.
The CFS headache is also one that leaves you with a feeling of being outside your body, looking in. I know that sounds weird, but I don’t know how else to describe it. When my head hurts this bad it is as though someone else is living my life. The minutes and hours blend together and don’t seem real. Everything is like a blur I guess.
Share your CFS headache experiences and let me know if you deal with anything similar.
