ME/CFS Awareness: What You Can Do
April 30, 2009 by Sandy Robinson
Filed under Awareness

Each year, May 12th is designated as International CFS Awareness Day and that date is quickly approaching. Last year I wrote a post with a list of things that can be done to help raise awareness. I wanted to republish that post since there were several good ideas we all can use.
There are many other things that you or a CFS support group can do to help raise awareness, thanks to the CFIDS Association. Their Grassroots Center has some ideas that I would like to share with you:
- Support groups can designate one person for the Grassroots Action Center Listserv (GAC) program to receive the latest advocacy information on CFS and share it with other group members.
- Either have your support group or several other people you know with CFS send an advocacy letter to your state’s two senators and Congress representative.
- Don’t forget to include the CFIDS Fact Sheet.
- Contact your local radio stations, newspapers, television stations, and magazines about CFS.
- Try to educate at least three people about CFS and the impact it has on daily living.
- Create a simple public service announcement (PSA) and send it to local publications and radio stations. You may be able to find a local graphic designer willing to creatively format your text at no charge. The CFIDS Association can provide you with sample PSAs.
- Distribute fact sheets or brochures on CFS to local libraries, pharmacies, grocery stores, churches, health food stores, and medical facilities.
- Give presentations on CFS to local women’s groups, church groups, civic groups and schools.
- Ask health care providers to display information about CFIDS. Don’t forget other health care professionals such as your dentist, optometrist and massage therapist.
- Send your personal story to newspapers, radio stations – anyone who will be willing to interview you on your illness.
Please also check out the ME/CFS Awareness website - lots of great information on Awareness Day & Awareness Week events!
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