My Hairdresser and I Have Two Things In Common: IC & Fibromyalgia

Saturday I went to the beauty shop to have my hair permed and the perm did not take – not on the ends anyway.� How this happened, I will never know.� I thought immediately after my perm that my hair didn’t look very curly, but I just assumed that it was due to the beautician just combing it out.� I figured the curl would bounce up whenever my hair dried.� But it never did.� By yesterday, my hair looked really bad and the top layer of hair had no curl – it was just straight and very dry.� So I called the salon back and I spoke with a nice lady who could take me last evening to see what she could do with my hair.�

She asked me if I was on any medication, because we all know how medication can affect perms and chemical hair treatments, and I told her I was and that most of them were for pain.� She also mentioned that she was on pain medication.� While washing my hair, Pam asked me what I was on pain medication for and I told her I had chronic fatigue syndrome, fibromyalgia and interstitial cystitis.� She looked surprised as she replied that she also had interstitial cystitis and fibromyalgia.�

We instantly connected as she fixed my hair.� It is amazing how instantly connected you may feel to someone who suffers the same as you do.� It’s nice to have someone to talk to who understands and I’m sure that it was the same for her.� We face the same prejudices, the same hurt and misunderstanding from others and have to deal with crappy doctors and can relate to what that is like.� We talked about what it was like to be labled as “junkies” because we have to be on pain medication to make it through the day.� Only patients who suffer like we do know that we take pain medication out of survival not because we are addicted to them.�

While I went into the salon only expecting to come out with my hair fixed, I found a new friend in chronic illness.�

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