Resources: CFS & Fibromyalgia Websites & Blogs
March 2, 2008 by Sandy Robinson
Filed under Blogs & Websites
Below are links to many blogs and websites that focus on Chronic Fatigue Syndrome and Fibromyalgia. Â I am including these as part of my Resources page so that visitors here at Fighting Fatigue will have plenty of resources to pull from.
If you have a website or blog that is not listed below, or you know of one, please leave me a comment so that I can add it to the list. Â I am trying to keep this list with blogs that are updated on a regular basis.
- Websites & Blogs
About.com: Fibromyalgia & Chronic Fatigue Blog
Beat Fibromyalgia & Chronic Fatigue Syndrome
Blue Ribbon Campaign for ME/CFS
Bringing The Heat:� An ME/CFS Blog
CFIDS & Fibromyalgia Self-Help
Disabled Online Users Association
Fibromyalgia & Fatigue Centers
International Association for Chronic Fatigue Syndrome (IACFS/ME)
Invisible Disabilities Advocate
Living With Chronic Fatigue Syndrome
Nadine Saubers Chronic Fatigue Syndrome Healthosity Blog
National Fibromyalgia Association
National Fibromyalgia Research Association
Nightingale Research Foundation
Not The Life I’ve Bargained For
Perpetual Spiral’s Invisible Chronic Illness Blog
Phoenix Rising:� A Guide to ME/CFS
Web MD Fibromyalgia Health Center
- Diagnosis & Other Helpful Tools:
CDC Criteria for Diagnosing CFS
Glossary! CFS & Fibromyalgia Terms and Lingo Defined
Criteria for Fibromyalgia Diagnosis
104 Great Resources for CFS, Fibromyalgia and Interstitial Cystitis
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Great list. Very helpful to see so many here, and some new ones I’d like to check out. Thanks for including How to Cope with Pain.
Fab list. Thanks for including FibroAction.
Hi
lots of great information for chronic fatigue. Lots of grea information. Do you wana exchange links?
Hi Chronic Chick! I would love to exchange links! I’ll add you now!
Hi there,
FibroAction is now hosted at http://www.fibroaction.org. Could you please update the link?
Cheers
Simon
Hi Simon! Sure thing! I’ll take care of it!
I’m adding your website to mine this weekend when I update.
My website, http://www.menwithfibro.com is devoted to the topic of men with fibromyalgia. Going on our sixth year, we have found there appears to be an increasing number of men being diagnosed with fibromyalgia.
The forum is the heart of the website, a place where men can share one with another, and find comfort in just knowing they are not alone anymore.
We would appreciate a link to the MWF site, or mention if possible.
Thanks
Bob Hall
administrator/owner
http://www.menwithfibro.com
Hi Bob! I would be happy to add Men with Fibro to the list above and to my sidebar!
What a great and thorough website on this topic! My new blog, graceryoung.com includes info on many topics dealing with disabilities and chronic conditions, including CFS and Fibromyalgia.
Would you please add a link to your list? I’ll add your link to mine asap – I have to wait for a little help with this – I’m really a newbie with links and such.
Thanks,
Grace Young
http://www.graceryoung.com
Hi, I’ve recently created a website called How I Got Better. It’s dedicated to letting people tell the story of how they got better from chronic illness. These stories are not necessarily about a full recovery, but in every case someone has found a way to improve their condition and make life better for themselves.
It is a non profit making site, and does not seek to promote any particular treatment. The sole aim is to let normal people tell their story of how they have improved their lives. Hopefully these stories will provide inspiration to others.
I am happy to exchange links, please let me know through my website.
It might help if I included ed the url! It’s http://www.howigotbetter.com
My fibro Dr. cannot treat me because I do not have insurance, even though I paid cash for my one and only visit. My latest Dr. has dropped me after four months because he doesn’t understand chronic pain and thinks I am searching for narcotics, based on the fact that I was allergic to both of the alternatives he perscribed. Can anyone help me navigate on line and find a Dr. who understands and maybe charges on a pay scale? I live in Grants Pass Oregon. Thank you
Thanks so much for this list..I have been looking for something like this for a while!
Fibromyalgia is serious & real and the more knowledge we can gain about it the better!
Thanks Again
Carrie