Coping & Support

  Because ME/CFS is a complex illness, it often takes many different medications to treat it.  According to the CFIDS Association: CFS treatment often requires a combination of medicines and other therapies; a 2003 study by the CDC reported that CFS patients had used twice as many different drugs as non-fatigued controls. The National Academies of... [Continue Reading]

My second video is availasble now on You Tube and you can watch it below! This video offers advice to families and loved ones of those suffering from CFS. Please pass the video on to others!  [Continue Reading]

I love the latest song from Miley Cyrus – “The Climb”.  Watch the video and listen to the words.  It is a very fitting song for all of us fighting chronic illness. I can almost see it That dream I’m dreaming but There’s a voice inside my head sayin, You’ll never reach it, Every step I’m taking, Every move... [Continue Reading]

ProHealth has a great article by attorney, Jonathan Ginsberg, on how to win your disability claim for ME/CFS & Fibromyalgia and what to expect at your Social Security hearing. Ginsberg specializes in Social Security disability cases for CFS & Fibromyalgia patients. Jonathan also runs the Social Security Disability Resource Website.  Here are... [Continue Reading]

I recently read an article from Dr. Sarah Myhill, a leading ME/CFS specialist in the UK, that mentioned how the people who get ME/CFS are those who “burn the candle at both ends”.  Is this true for you?  For me it is.  When I became ill I was seriously burning the candle at both ends.  Sarah says: They hold down a demanding job, care... [Continue Reading]

My Journey

It is one week today since my surgery and I still feel as though I am recovering from the anesthesia.  I actually have more pain in my leg now than what I did the first couple of days after my surgery.  I was at the doctor’s office yesterday because of the pus coming out of the incision on my groin and he said that it wasn’t bad and just... [Continue Reading]

I have to call the doctor this morning about one of my incisions - I think it’s infected.  It is one of the incisions in my groin and last night I noticed something smelling really bad when I was using the bathroom and I looked down at the incisions and noticed some pus.  At first I thought it was my urine smelling so bad but when I saw the... [Continue Reading]

Saturday was my first day out of the house since I had surgery on Wednesday and all in all I think I did pretty good considering it’s me we’re talking about!  I am still not feeling well but by Saturday I thought I was going to go nuts being cooped up in the house.  My husband & son took me out to dinner then we went to run a couple... [Continue Reading]

I had my surgery on Wednesday morning and everything went rather well.  I was scheduled to be at the surgery center at 9:15 a.m. and I was taken back to OR-prep at about 9:45 a.m.  By 10:30 a.m. I was being wheeled into the operating room and I was released from the hospital shortly after 1:00 p.m.  All in all I was rather pleased with the friendliness... [Continue Reading]