Coping & Support

Trying to find the courage, strength, and energy to continue to fight with ME/CFS & Fibromyalgia is enough to make us feel like we are going to go crazy but we have to dig deep and not give up on ourselves even when everyone else has.  For most of us, we have went through many friends, doctors, most of our family members and have no one but ourselves... [Continue Reading]

Please welcome guest blogger, Karen, from Sofa & the City.  You can read her full bio below the post!  I have always believed that it is naive to dismiss the role of the mind in M.E., or in any other illness for that matter. There is a lot of stigma around how M.E. is classified and I don’t doubt that it is a physical illness but does that... [Continue Reading]

Today I went back to work after being off for two weeks and as I was making my way around the store, I kept thinking about how strong of a person one must be to live and cope with CFS & Fibromyalgia.  The old saying that “God doesn’t give you more than you can handle” must be true.  If not, look how many millions of us wouldn’t... [Continue Reading]

Dealing with doctors is so frustrating with illnesses like CFS & Fibromyalgia.  Back when I first became sick, CFS was rarely heard of and it was around the time when “yuppie flu” was heard instead of CFS.  Most doctors didn’t believe it existed at that time.  Today, there has been a lot more reported on CFS & Fibromyalgia... [Continue Reading]

Here in PA, we have been having some really bad weather over the past week – two blizzards within 5 days.  That is a lot of snow!  The snow itself was bad enough but add to that the wind and the size of the snowdrifts have been unbelievable!   I was supposed to work last Saturday morning from 7 a.m. – 11 a.m. and my husband told me... [Continue Reading]

My Journey

It seems like I can never get ahead no matter what I do.  I start to feel somewhat better and have actually been doing fairly well over the past month and then I go into the dermatologist yesterday for a routine Rosacea check-up and find out that I had four areas of what she believes to be pre-cancer on my body.  It’s a good thing that I pay... [Continue Reading]

I started on a new diet program and the endocrinologist started me on the new thyroid medication at about the same time so I’m not sure if the improvement I am feeling in my health is from the medication, the diet, or a combination of both.   I started on the Medifast diet program through Take Shape for Life on June 20th and on June 23rd I started... [Continue Reading]

Sometimes I think it would be so much easier to just be lazy and to not give a crap about life – then having CFS & Fibromyalgia wouldn’t be so hard and confusing.  I am living the life of a sick person but it’s not me, it’s not who I am inside and it’s not what I wanted my life to be.  I am 41 years old and I should... [Continue Reading]

If you have missed out on the latest drama with me and my health issues, please read part 1 and part 2 to catch up and then this post will make sense.   This morning my husband took me to see the endocrinologist and I thought this day would never get here.  Finally – I’m going to get some help and relief – and I am, but I’m... [Continue Reading]