Coping & Support

I know a lot of people don’t understand why I don’t look forward to Christmas, but if you suffer like I do, I know you know where I’m coming from.  For me, the holidays just represent more work, more exhaustion, more flares.  I try my best to stay upbeat for my family but all I can think about is how all of the extras of the season... [Continue Reading]

Dr. Bruce Campbell offers some great advice on ProHealth on  how to find and work with your doctor when you have ME/CFS and/or Fibromyalgia.  Because ME/CFS & Fibromyalgia are such complex illnesses, there is often several physicians ranging from family doctors to specialists needed to help treat the illnesses.   Some of these physicians include... [Continue Reading]

Tuesday as I was driving home from work, the radio announcer mentioned that there are only 40 days left until Christmas and I immediately felt myself start to panic and stress.   It has been a really rough few months and I haven’t even started or began to start thinking about Christmas shopping and everything else that goes along with the holidays. ... [Continue Reading]

I have written before on Fighting Fatigue and I have also read elsewhere that the divorce rate involving a chronically ill partner is 75%.  That is extremely high and my first marriage failed in part due the lack of support I received from my ex-husband.  He didn’t believe I was really ill and that lack of support and trust was a huge factor... [Continue Reading]

Yesterday as I was trying to rest on the couch, feeling miserable from my bad sinus infection and CFS flare, I was having a mini-pity party for myself when I saw something amazing on a television show that I feel I was meant to be tuned into at that particular time.  I was watching The Doctors and I viewed the story of a very courageous woman who suffers... [Continue Reading]

My Journey

I have been totally and completely miserable since last night.  I can’t seem to get rid of this exhaustion (thanks, CFS!) and to top it off, a stomach bug has hit – or I think that’s what it is.  CFS has a way of stealing any joy out of life.  Even though I’ve been sick for so long, I still never get used to it completely. ... [Continue Reading]

I started taking Lyrica the beginning of December and in a month’s time I have gained 8 pounds.  I knew that weight gain was one of the side effects of Lyrica, but I didn’t worry about it because I have never gained weight on any other medications that had weight gain as a side effect (not that I can remember).   This is very frustrating... [Continue Reading]

We left the day after Christmas to go to Georgia to visit my stepdaughter and her husband.   I have been doing really well on my gluten-free diet and my energy level has greatly improved.  Going on vacation and going gluten-free when you have to eat out every meal is almost impossible and I did indulge a little bit.  I also ate gluten over Christmas.  ... [Continue Reading]

I apologize for the delay in posts. I had posts written and scheduled to post and for some reason they are not publishing to the website. Please bear with me during this time as I try to figure out what’s going on. Thanks! I hope everyone had a nice Christmas!  [Continue Reading]