Coping & Support

Here in PA, we have been having some really bad weather over the past week – two blizzards within 5 days.  That is a lot of snow!  The snow itself was bad enough but add to that the wind and the size of the snowdrifts have been unbelievable!   I was supposed to work last Saturday morning from 7 a.m. – 11 a.m. and my husband told me... [Continue Reading]

I know a lot of people don’t understand why I don’t look forward to Christmas, but if you suffer like I do, I know you know where I’m coming from.  For me, the holidays just represent more work, more exhaustion, more flares.  I try my best to stay upbeat for my family but all I can think about is how all of the extras of the season... [Continue Reading]

Dr. Bruce Campbell offers some great advice on ProHealth on  how to find and work with your doctor when you have ME/CFS and/or Fibromyalgia.  Because ME/CFS & Fibromyalgia are such complex illnesses, there is often several physicians ranging from family doctors to specialists needed to help treat the illnesses.   Some of these physicians include... [Continue Reading]

Tuesday as I was driving home from work, the radio announcer mentioned that there are only 40 days left until Christmas and I immediately felt myself start to panic and stress.   It has been a really rough few months and I haven’t even started or began to start thinking about Christmas shopping and everything else that goes along with the holidays. ... [Continue Reading]

I have written before on Fighting Fatigue and I have also read elsewhere that the divorce rate involving a chronically ill partner is 75%.  That is extremely high and my first marriage failed in part due the lack of support I received from my ex-husband.  He didn’t believe I was really ill and that lack of support and trust was a huge factor... [Continue Reading]

My Journey

The past 2 to 3 weeks have been extremely difficult as I fight another ME/CFS flare.  Everytime I have a bad flare, I feel like I did when I first got sick.  I’m scared, frustrated, angry, confused, depressed and feeling so sick I don’t think I can go on.  To be honest, if it weren’t for my son and husband I probably would not still... [Continue Reading]

I apologize for the lapse in posting but I am currently having a bad CFS flare and I am not up to much of anything right now.  I will post as soon as I am up to it.  [Continue Reading]

I have been totally and completely miserable since last night.  I can’t seem to get rid of this exhaustion (thanks, CFS!) and to top it off, a stomach bug has hit – or I think that’s what it is.  CFS has a way of stealing any joy out of life.  Even though I’ve been sick for so long, I still never get used to it completely. ... [Continue Reading]

I started taking Lyrica the beginning of December and in a month’s time I have gained 8 pounds.  I knew that weight gain was one of the side effects of Lyrica, but I didn’t worry about it because I have never gained weight on any other medications that had weight gain as a side effect (not that I can remember).   This is very frustrating... [Continue Reading]